It's been a while ...

# 7

So, I don't even know where to begin.  It's been a while...

I guess I'll start by saying, that I did get my picc line out about a month ago.  I was getting 3 days of IV fluids and 2 bags at a time; I started getting really dizzy because of my Menere's Disease & the amount of sodium that's in each bag.  (Apparently I should only have 1500mg of Sodium a day) So, the nurses ended up taking it out...

Since then, I've dropped a little weight (I'm down to 109) & when I got the line removed I was at 116.  The nurses told me I hadn't gained enough wieght, but they took it out, and I was really anxious for that!  The past week, I've been very sick; not being able to keep things down, throwing up undigested food.. I finally decided to go to the E.R. which I didn't want to, but it was a week straight of this & I knew I was dehydrated.  I got to the hospital, they took me back real quick, the Dr came in & I told him everything.   My Gastroenterologist (who specializes in Motility Disorders) has put special instructions in my file for when I go to the hospital.. Basically because no one knows what to do with me.  I simply let the Dr. know this & he acted like Mr. Know it all & said I know what to do... Anyways, he did the norm (well for the most part) .. fluids, bloodwork, nausea, and something for my pain.  I started feeling better, and they were talking about admitting me.  When the Dr. came back he sat down in a chair & said if you were having all these issues it would be showing up in your blood... and "you're not dehydrated" I got so upset!!  I said then why was I on fluids for over 6 months!!!?  He said maybe you were dehydrated back then.  OMG!!!  I told him to take the damn needle outta my arm n let me go home since I obviously didn't need anything.  He told me to please stay and finish the rest of my 2nd bag.........................

At the end of the whole thing he apologized and said that he didn't mean for it to sound like that, well it was already too late.  (it's hard for me because my family doesn't give me support or believe me either, execpt for like 2 people) So, it's very frustrating!  All of a sudden, I remembered this Dr. from before when I went... UGH!!!

I called my Dr.  Dr. Patterson, and got upset at the office because they weren't returing my phone calls, and it takes months to see my Dr.  Well, to make that long story short, he sqeezed me in his schedule the next day.. (today!)

I went in, and just as I thought had lost 4 pounds in 2 days.  Everyone always says, I need that kind of diet.  I mean, my ex even said that to me tonight on the phone... I said really dude, you know that's like the worst thing to say to me, he said yeah I know... Anyway, I was told by Dr. Patterson it was time to put my Picc Line back in, and that I might have to be on TPN.  I never ever thought I would get to this point...  I went and got some bloodwork done, I can't remember what it's called, but that's how they know if you need TPN or not.  Normal range is 20-40 and last time I was at 21 and weighed a little more so it could go either way.. He said that he would find out the results tomorrow, but the suspense is killing me.  Plus, I don't know how long it'll take them to call me.  So, basically, my appointment is at 1:30 tomorrow, and I won't know what I'm going to really be doing by then, or maybe I will who knows.  But, I do know one thing... it's really hard being 3,000 miles away from home, dealing with all this alone...